Sunday, May 17, 2015

Choices: 1st round of chemotherapy

Hot air rushes past dry crackling lips.  I desperately attempt to fill my lungs with fresh air.  Sucking.  Chest expanding.  It's no use.  Nothing changes.  I lay in bed, panting, trying to get air, but can't seem to slow down my breathing enough to take a deep breath.  Heart pounding, I can feel the blood pulsing through my limbs.  I take a quick assessment of my body: hot, probably fever; twitch my fingers, maybe the smallest movement only noticeable to me; open my eyes, just enough to glimpse a sliver of light.  What happened to all my motor functions?

*click*

I hear the front door.  Yay, Noel's parents are here!  Excited, I attempt to call out a greeting.  Nothing.  Soundless, my lips barely move.  Air flows quickly, but no sound comes out.  I try again.  Failure.

What should I do?  I'm all here in my head, but my body doesn't obey my commands.  I have no sense of time.  I'm unable to move, to speak.  Interesting ideas are coming to mind about how to draw attention: throwing my seal plushie down the stairs, knocking over my water bottle... Yeah, if only I can move.

*rumble*
               *squeak*

Ah, Noel's home!  Anticipating him checking in on me, I prepare to go all out and catch his attention!  Air hisses out my throat, but no recognizable sounds.  Furiously I attempt to roll out of bed... my foot moves one inch, maybe less.  My hand, a slight vibration through the bed, but no sound.  Panting, I lay, still in the same position I've been in all day.

Helpless I lay trapped under heavy comforters.  I listen to Noel greet his parents, go back outside to clean his paintball gear, then come back inside.  *clink*  I hear metal utensils clanking on the food bowl... Noel's probably eating.

Hello... I try to call out.  But again, I can only produce the same panting breath as before.

I don't know how much time has past until I feel a slight vibration through the bed.  Is that steps on the stairs?  Noel?  I hear a person creep silently to my side, probably trying not to wake me.

Look!  I'm awake!  Look harder!

Hot air continues to flow in quick bursts between my lip.  I still don't have control.  In frustration, I feel burning tears slide down my face.

"Why are you crying?"

I try to answer, but nothing comes out.  I feel my tears flow faster.

A rough and cool finger wipes away my tears; first my right eye, then my left.  New tears flow out.  I think my pillow is starting to get wet.  This is embarrassing.

I feel my body pulled partially upright.  I'm dead weight, I can't move a single muscle to help.  A wet spoon touches my lips and pours soup into my mouth.  I attempt to swallow and choke instead.  After a couple more failed attempts with the spoon, I mouth "straw."  Straw in hand, Noel holds my head up.  I still choke three or four times, but at least the fluid is going down the right tube.

Noel cradles my head.  I'm finally able to open my eyes.  Gently, he brushes his face near mine, "Don't scare me like that!"

"Sorry."  I didn't mean to.  I didn't feel good, I hurt, got really hungry and then I couldn't move at all.  I'm scared too... I've never been trapped alert in my body before.  It sucks.


Father God, I don't remember much of these past couple days, but I acknowledge everything is in your control.  Thank you for providing Noel the ability to work at home when I  first needed care.  Thank you that Noel's parents are willingly staying over these past couple of days to cook, clean, check up on me, literally feed me, carry my to and from the house to the car for my acupuncture appointment, feed the cats... So much, Lord God, am I blessed by your provision when I can do absolutely nothing on my own.

Fevers rage. Pain immobilizes me.  Strength is nonexistent.  Air, a difficult to acquire commodity.  I lay in bed; tossing in discomfort when I can, freezing in pain or sometimes writhing to find a more comfortable position.  I pant for air and claw at the bed.  My mind is glazed, time flows on.

Every day is a battle.  Do I choose to follow my doctor's advice and continue injecting the Neupogen that's supposed to protect me but also causes fevers in the 102+ range, uncontrolled by Tylenol and requires me to constantly take Benedryl to ward off my allergic reactions?  Just one more day.  Keep going.  Can I eat enough to maintain my weight without getting nauseous?  I've lost 5 pounds now,  but I make sure that I eat every 1-2 hours I'm awake.  Exercise?  Forget it.  I'm lucky that I can even use the restroom without falling over.


Lord God, even in this time, I know that you're with me because you promised to be.  In you I trust; no more and no less.  Because I acknowledge you, Father God, Jesus Christ and the Holy Spirit as sovereign Lord of my life and my household, I trust the stability of my health in your hands.  By choosing to follow doctor's orders, I am choosing to follow your lead.  As I send Noel off to serve in Bigfoot youth retreat, a huge part of me wants my husband by my side, but when it comes to serving you, may nothing... not my health nor personal wishes interfere.  So Lord, for these next 4 days and 3 nights, I entrust my husband, myself, Noel's parents all into your all-powerful hands.  May our attitudes and decisions bring you complete glory for we serve you first... beyond ourselves and even our families... to you and for you, Oh Lord, may you truly always come first.

In Jesus' name I pray, amen.



Here's a pic of my first chemo infusion of Dacarbazine... it's cold!


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Thanks for taking the time to leave a comment! *big hugs* --Kristy