Thursday, September 26, 2013

Flickering Flame

Empty moments
Broken inside
Darkness reigns
Cold dull mind

Sleepless nights
Endless days
Repeating and repeating
Shadowed self

Rocking, forward and back
Arms wrapped tight
This day just started
End, someday will

Seconds tick by
Time flows on
Eternity the present
Closing my eyes

Teeth clenched hard
Fingers clawing air
Twisting and turning
Chains wrapped tight

Escape?
Life?
Sarcastic laughter
Angry grumbles

Tired, so tired
Strength long gone
Constant struggles
Living hell

Pasteur green
Other side
One life to live
One chance to die

Wishful dreams
Barely sane
Streaming tears
Heart's shuddering shame

Anguish and pain
Screaming despair
Lost in mind
Fettered soul

Grasping hope
Lord of my life
Jesus Christ
Sanity’s light

Flame in darkness
Debts already paid
Slave to kindness
Life bought and saved

Blood, given freely
Offering to serve
Give me purpose
Lord help me live

Hands reach out
Grasping at hope
Cherished memories
Guiding light

Salvation in Christ
Hope eternal
Shinning bright
Flame of life 

Lord, Father in Heaven, I feel so broken. It's so easy to lose hope that the blessings you provide flutter away in the blink of an eye.  I want to stand strong, to face myself... but without you, I really am nothing.  

Thank you, Father God, for providing family and friends to stand by my side, to carry me when I'm weak, to remind me of you, of hope, of life.

In Jesus' name, amen.
Dinner with my co-worker friends.  Thank you for picking me up and taking me home when I couldn't drive... for reminding me of life that I still need to live.  *super big hugs*  Love ya guys!
Isaiah 40:31 (NIV)
But those who hope in the Lord
    will renew their strength.
They will soar on wings like eagles;
    they will run and not grow weary,
    they will walk and not be faint.



Tuesday, September 17, 2013

Total Trust

Wednesday, September 11, 2013

       Deep breath
                          Breathe in
Breathe out
             Prepare
Remember: lifting, pushing, pulling restrictions of 20 pounds. Oh wait, this is literally my second day of doing any exercise at all!  Ummm... Okay, I'm limiting myself to less than 5 pounds!  

Equipment on.  Triple check.  Ready to climb.

Leg up. Oh wait, too high.  If I lift my leg this large a step, I'll have to use my arms more for balance and pulling.  Can't do that.  Step back down... down a little more...  ahhh, leg's still too high!  Alright, placing my foot on a rock only a couple inches higher, this will work!  Leaning forward, I gently stand up.  Success!  Yay!  I moved up 3 inches... *deep sigh*  This is gonna take a while.

Wait shift right. Step. Carefully and slowly lean left.  Ah... Haven't unweighted my right leg enough... still can't move it.  Lean left more.... Gonna fall, gonna fall!  I won't fall!  I refuse to fall... Right foot up... A little more... Got it!  *Sigh* 
Relief. Rest.  Bleah... I'm still less than two feet off the ground.  *smirk*  Good thing my friends've got my back!  If I slip, they're holding my safety rope... if I slip, today, I'm not catching myself... that'll be more than my self-issued 5 pound pulling restriction.
Slowly, inching arms overhead, I place my palms on the wall. Kristy, stay balanced!  I know this is a super easy beginner climbing wall and I'm not even sticking to the proper route color, but yikes, this is harder than I thought it would be!  I even chose a wall that leans in so I don't have to hold myself upright... but dang... my balance and these slow movements are a lot more difficult!  What normally takes me a minute or less to reach the top.... well, let's just say that there's no guarantee that I'll make it to the top at all this round.  =O  Okay, try again.  Balance.  Small steps.  Lean into the wall.  Breathe.  Repeat.  Repeat again.



Thursday, September 12, 2013

Blinking eyes, gray skies, blurred vision.  Am I awake?  My body feels heavy... not the bad kind where I don't feel good, nothing like that.  Ummm, how to describe it?  I feel like I got a good workout... that kind of heaviness.

Hopping out of bed, I do a quick scan: where do I ache?  Wherever I ache means the muscles got a workout.  Let's see...  lightly moving, I twist, turn, bend every joint, using every muscle from the fingertips to my shoulders.  SCORE!  No achiness!  Okay, next important area, my trunk.  Twisting side-to-side, bending forward and back... anything?  Anything at all?  Heheheeeee... nope.
Next... legs... ahhhh, my feet ache and my hips too.  *shrug*  This, I expected... a good leg workout!  (Actually, I was hoping my legs would be more sore.  I want to build up to my prior level of leg strength!)  =D

Father God, thank you for the opportunity to climb!  The stretching, reaching, bending, scary balancing, using muscles that have been sleeping for way too long... Lord, I so thank you for this opportunity to lightly get a workout and enjoy having fun with friends and Noel.  By your blessings, thank you that my body behaved!  Even though I was scared and there were a couple of times when I got really worried my body would act up... Lord, even in those times, you helped me safely reach a bathroom and you kept my body fully under your control!  Thank you for the new medicine... my body's reactions still are not consistent, but Lord, I believe that it is by your power I was able to go out and have fun!  Yesterday, each time I got home after going out, my body would act up, but not for the time I was out.  Yay!!!  Fun.  New memories. Goals.  Hope.

Thank you, Lord, that as I totally trust you to provide and come through, you do.  By trusting in you, this climbing session became possible.  Without you by my side, Lord, I wouldn't dare to schedule this indoor climbing session... in fact, as of Tuesday night, I wasn't even sure my body would allow me to be out and about!  

In Jesus' name, I praise you, Lord, for controlling my body and blessing me in so so many ways! Thank you for making what's impossible with medicine and self-control alone possible by your power and your provision!  Amen.

This is the group I climbed with today!  Thank you for keeping my safe!  =D

The me on the left is what I like to climb... nice and challenging routes.  The center me is the first route I climbed today... never climbed it before because it's too easy... but that's my level for today.  =O

Last climb of the day, more difficult, but didn't stay properly on route either.  So fun!!!

Wednesday, September 11, 2013

What's in this day?

Saturday, September 7, 2013

Sensations of discomfort temporarily over-ridden by myself... stronger, louder, more noticeable... fingers clawing at my palms, nails scrape across skin, toes digging into the floor... a mask to overwhelm my body's own sense of pain.  A cacophony of sensations.  A struggle for control, for relief, for hope.  Marks unconsciously made... a red imprint, a new ache where none should be.

What am I doing?  Red marks, even temporary with no bruising or skin breaks... these marks come awfully close to causing superficial damage.  When did this start?  Ummm... if I had to guess, probably sometime after my most recent surgery.  Unplanned.  Unintentional.  I unconsciously and instinctively created a new way to deal with the constant physical distress of my new body by overriding the current bodily sensations with a stronger sensation under my own control.  Distraction, a very temporal form of pain relief.  Not one I recommend.  Yeah, I do want control over my body, but damage of any sort, even temporary, is not my intention! 

Every day, new marks come and go.  I didn't consciously note the cause and effect of these red marks... in fact, I remember casually noting in a muddled fashion that I frequently had red marks present.  Now that I acknowledge what I'm doing, I will not allow myself to continue!


Monday, September 9, 2013

Hey Doc... those over-the-counter meds really aren't working.  I don't run to the restroom as often, but I'm still running more often to the restroom than any normal person should!

Even now, I'm never sure when my body will act up.  A quick self-assessment, reassessment... *shrug*  No matter how much I try to anticipate my bodily functions, I don't feel safe.  Too many times, even while being on Immodium AD, my body betrays me.  Over and over again, I tell myself: "I've got this!  I have a grasp on what my body is doing now... hopefully no more problems!"  Does my self pep-talk work?  Nope... not where I can safely and consistently travel in public.  Unfortunately, no matter how much I attempt to tune myself to my body's functions, there are times when I cannot accurately gauge what will happen and when.  =S

Arriving at home, I pester Noel to help me change my car's engine oil... and oh yeah... by the way, since the car's already up... help me rotate tires too!  From Noel, I get a look.  I know, I know... I can't lift much and I can't do much... but my car's so large that I can't safely get it lifted off the ground by myself even when I'm not on restrictions!  Plus, the weekends are usually busy... and well, since Noel nicely took off work to take me to the doctor's... we've got the whole afternoon free.  Let's do this while I still feel okay!  Please?!??

Heheheee... such a loving husband.  He jacks up my car while I hoover nearby to slide the jackstands in place.  I start unscrewing the drain plug to release the engine oil while Noel runs around removing my tires.  I dictate where the tires go, Noel places them back on.  Next thing I know, I'm not feeling so great.  My stomach's churning, my head feels light, the ground appears to tilt a little... "Hey Noel, I'm gonna go lay down."  Miserable, I'm sneak back in the house while my husband torques down the tires, changes the oil filter, refills the engine oil, and sets my car back down... all by himself.

Sorry... I really needed my car worked on... but I wasn't any help at all.

Later on that night:
"Hey Noel... my new meds are finally ready at the pharmacy... they close in an hour... can you pick it up for me?  I still don't feel well.  Sorry, I know you just settled down to rest and I can't go with you... but I really want to trial those new meds... the Immodium AD isn't working today.  Can you please go get them for me?"  My poor husband, without a single complaint, gets up and drives off to pick up my new medicine.


Tuesday, September 10, 2013

God, thank you beyond words for my beloved husband!  Honestly, if it wasn't for my body being so broken, I would never have experienced my husband's generosity and love to the crazy needy extent that I now constantly ask of him.  Thank you, Lord Jesus, for my husband's continued health, work and extensive amount of patience!

Today, I want to shout praises to my Lord!  Lord God, you answered all the many prayers about having a medicine that will allow me to have control over my body!  At least today, the new medication (generic version of Lomotil) appears to be working!  I don't feel queasy or fatigued.  In fact, Lord, I believe by your blessings, you guided the doctors to change my medicine and enabled my body to react appropriately!  Thank you again, Lord God, for renewed hope, for safely roaming outside of the house today, for strength, for a clearer mind to focus, for wisdom in what exercises to perform (I actually did 15 minutes of light exercise... enough for a light sweat!), for safety as I drove my car for the first time in over a month... for so many blessings in this one day alone!

I lift your name and shout my praises... Thank you, Lord, for everything!  This life, this cancer, modern medicine, my doctors, my family and friends, my husband... thank you, Lord, for opening my eyes to see your many blessings, your abundant provisions and for the ability to see the good even in times of difficulty.

In Jesus' name, amen.

Got my cat, Rogue... she's hard to catch!

Hey Rogue... look at the camera... I'm trying to take a picture!

Uh oh... Rogue's unhappy.  This is right before she runs off my lap!

Wednesday, September 4, 2013

Highs and Lows

Tuesday, September 3, 2013

There are days when I feel my body betrays me.  Today is one of those days. Listless, I lay on the couch... Drained, dizzy, weak.  Why isn't the medicine working?  Frustrated, grumpy... I just want to give up... But give up what?  Give up taking the meds?  I don't dare! Give up living?  That sounds so silly after struggling so hard and being so blessed!  Grawr!!!

These past couple days, weeks, month, years.... I'm learning what my limits are... that with God, there are none.  I get flipped, punched, spun until the world swirls and nothing makes sense... And yet, my only constant is God's promise that he loves me so much he even sent his beloved son, Jesus Christ, to die and to rise again so that my sins are forgiven (John 3:16-17).  Easier to say, hard to remember, even harder to live it!

So much for "The American Dream," if I work hard enough, I'll succeed.  So much for the religious belief that if I believe and follow God, my life will be blessed with health and wealth and ease.  *Smirk* In fact, as I read the Bible today, it very clearly states otherwise!  Story after story in the Bible portray struggle, death, pain... But throughout it all, a common theme of God's love is at work... God cares so much he's living in all this muck and dirt and pain with us.  Yikes!  I'm totally grateful, but not something I think I would choose... to be so exposed to hurt, pain, betrayal... if I had the choice... nice and comfy sound pretty good to me!  But that's the difference between God and I... that's how great my Lord Jesus is.  Because of God's great sacrifice and love... that's why I want to follow in his footsteps... to be more than my petty self.

A single day's worth of disappointment isn't enough reason to wipe my memory of good times and God's plentiful blessings!  How can I be so weak? Looking back to yesterday, how can I let myself be so down?

Two friends from my graduate school years.... Both I haven't seen for what.... 2-3 years?!!!  Yikes!  Without much thought and only a little hesitation on my part, out we go for lunch!  Short painless drive (not the gut-wrenching bumpy ride I feared), super yummy Mexican food *drool* and then even shopping afterwards!  *Wide grin*  My beloved husband stuck close to my side, constantly asking "How are you doing?  If you're tired, let me know right away!"  So cute!  He even scouted the restrooms for me (just in case).  =D

Lots of talking.  Lots of stories and catching up.  Board games.  Comfortable. Safe.  Laughter.  Calming balm to my soul.  A time of hope and encouragement that yes, I can live this life.  That yes, God blesses me so I can appreciate the good days... to even have time to rest and recover!

So I choose, again and again, to live this life as God assigns me... As a person bound to this world, I am free.  As a person free to make my own choices, a slave to Jesus Christ my Lord.  (1 Corinthians 7:17 and 20-24)

Next step:  prepare for a crazy-long, two and a half week, vacation to Hawaii in October before settling down for (hopefully) my last set of chemotherapy.  =O

Here's me playing around with my iPhone...  Thanks for reading!  =D